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MND Clinical Nurse Specialist

Practical and emotional support

Saint Michael’s MND Clinical Nurse Specialist offers information and support for patients and families living with Motor Neurone Disease, from diagnosis.

– Supporting you in your own home or current place of care

– Ongoing assessment and monitoring of symptoms to enable you to manage any challenges you may be experiencing

– Identifying and planning your individual care, focusing on physical, emotional, spiritual and practical aspects of your life

– Supporting the practical and emotional needs of family and carers.

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Accessing support

If you think you could benefit from using a Saint Michael’s service, please talk to your GP, district nurse, specialist nurse, consultant or any other healthcare professional involved in your care about your options.

Judy's story

Motor Neurone Disease (MND) affects the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do. It causes weakness that gets worse over time and as yet, there is no cure.

Judy said: “Over the last year of Pete’s life, we had such wonderful support from the team at Saint Michael’s and I cannot begin to express my gratitude.

“I don’t know where we would have been without you. The support for us all has been absolutely wonderful.

Read more of Judy's story

"Every member of the Saint Michael's team goes above and beyond their job description. The love and care that is present in everything they do, is so comforting."

Creating special memories

“One day, Saint Michael’s MND Clinical Nurse Specialist arrived with a large box under her arm. Unpacking it revealed all the elements to build a campfire in our living room! Every piece had been hand knitted by a volunteer, even down to the marshmallows for toasting!

“She had taken inspiration from our last summer holiday to our favourite farm in Wales, where we had enjoyed sitting on the patio of an evening with a fire going."

Find out about our wellbeing volunteers

Care at our Inpatient Unit

“In the autumn, Pete spent some time in the Inpatient Unit at Crimple House. Every morning during his stay, a member of Saint Michael’s team would phone me to update me on how Pete’s night had been and how he was getting on, and would also take the time to ask how the kids and I were doing.

“I can’t describe how it feels to be separated from a terminally ill loved one for any length of time. These daily updates lifted me up every morning and gave me the strength to face the day."

More about our inpatient care

Just 'B' bereavement support

“Telling our children that their Daddy was dying was the most painful thing I have ever had to do, and I pray that most people who read this will never know how it feels. Sadly, such tragedies do happen and this is where the Just ‘B’ bereavement and emotional wellbeing service comes in.

“My daughter created a memory jar during her sessions. She’s built up a rainbow of layers of coloured chalk, added some glitter and written down some special memories of her Dad, tucking the notes into the top of the jar. Each coloured layer represents one of these memories that she’s chosen to include. It will no doubt be a treasured item for years to come."

More about Just 'B'